News & Announcements

NF2 Research and Media News 2010

Dec 30, 2010: ‘NF2 News’ winter 2010 newsletter by the NFA, in the UK. – Interesting opening article on the NFA’s new 5 year plan. Also, a very interesting article on Avastin™ for NF2, page 7. Dec 1, 2010: CTF announces a Phase 2 of the DDI ‘NF Preclinical Consortium’ (NFPC). Funding (at $1/4M each… Continue Reading →

2010 Halloween Bash Raises 20K for NF2 Research at OSU

The 6th annual Halloween Bash to benefit Children‘s Hospital Oakland and to find a cure for Neurofibromatosis type 2 took place on Friday, October 22nd in Walnut Creek, California. Roland and Nicole Thoms have been throwing this Halloween party since 2003, a year after their daughter,Camille (then 7 years old) was taken to the hospital… Continue Reading →

A Discussion with Dr Abhijit Guha

Update 2016 – Due to the unfortunate passing of Dr Guha, this trial has been closed. A new NF2 Phase 2 clinical trial has been announced using Nilotinib, the second generation of Gleevec (which has been used for decades in a variety of other human tumors). This trial will be through the University Health Network… Continue Reading →