News & Announcements

AdvocureNF2 Compass – Issue 21- Spring 2014 Newsletter

AdvocureNF2’s Compass brings you information on NF2 research, advocacy, personal stories, and fundraising events. Highlights of Newsletter: 2014 Funding from AdvocureNF2 May 22nd is NF2 Day Extraordinary NF2er Renee Stebar Dr. William Hitselberger Obituary DOWNLOAD THE FINAL ISSUE For past issues, visit the Newsletters Page

AdvocureNF2 Collaborates with CTF Synodos

The Children’s Tumor Foundation and AdvocureNF2 are proud to announce a collaboration to fund Synodos for NF2. Synodos is a highly integrated, multidisciplinary consortium of scientists from varying backgrounds – from basic science, to translational science, to clinicians – who are working together to develop treatments for NF2 in a highly informed and highly collaborative… Continue Reading →

NF2 Research and Media News, 2013

Changes in gene explain more of inherited risk for rare disease Posted:Sat, 28 Dec 2013 13:30:00 EST Changes to a gene called LZTR1 predispose people to develop a rare disorder where multiple tumors called schwannomas form near nerve pathways, according to a study published today in the journal Nature Genetics and led by researchers from… Continue Reading →

AdvocureNF2 President Marie Drew Retires

Marie Drew, who has been president of AdvocureNF2 since 2009, has announced her retirement. Ms Drew is only the second president since the founding of Advocure, by Rosemary Lee in 2005. Barbara Franklin, Vice President, will assume her responsibilities. Marie has been an advocate since 1990, first with the Acoustic Neuroma Association, when she was… Continue Reading →

Walk Your Wig for NF2 Fundraiser Recap

On October 19, 2013, Kim Walker and her family held their first WALK YOUR WIG FOR NF2 event. The fundraiser aims to raise NF2 awareness and funds for research through AdvocureNF2. Recap from Kim Walker: We had a great day and a lot of fun. We began with a 1.6 mile journey up the highway… Continue Reading →