NF2 Clinical Centers

With NF2 being a rare disease, getting a second or third opinion is highly advised. Below is a list of some NF Clinics with reputable doctors whose backgrounds include NF2.

University of Virginia – NF2 Clinic

Charlottesville, VA
Clinic Director: Ashok R. Asthagiri, MD
To make an appointment, call: (434) 243-2757 or email: nf2@virginia.edu

Massachusetts General Hospital (MGH) – Neurofibromatosis Clinic

Boston, MA
Clinic Director: Scott Plotkin, M.D., Ph.D.
Call for Appointment: 617-724-7856

Other Physician: Brad Welling, MD, PhD

NYU Langone Medical Center – Neurofibromatosis Center

New York, NY
Clinic Directors: Jeffrey C. Allen, M.D., J. Thomas Roland, M.D., & John G. Golfinos, M.D.
Clinic Coordinator: Carole Wind Mitchell RN MS OCN CORLN
Phone: 212-263-9984

Johns Hopkins, Comprehensive Neurofibromatosis (NF) Center

Baltimore, MD
Clinic Director: Jaishri Blakeley, MD
Clinic Coordinator: Amanda Bergner, MS, CGC
For more information, please contact: 410-502-6732

House Clinic

Los Angeles, CA
House Clinic – Neurofibromatosis type 2 (NF2)
Derald Brackmann, MD
213-483-4431

NIH (National Institute of Health), Clinical Center

Bethesda, MD
E-mail: prpl@mail.cc.nih.gov
Phone: 1-800-411-1222
TTY: 1-866-411-1010
Fax: 301-480-9793

Cleveland Clinic – NF Center

Cleveland, OH
Phone: (216) 636-5860
For appointments call: 866-320-4573

University Hospitals – Neurofibromatosis 2 Center

Cleveland, OH
Call for Appointment: 1-866-UH4-CARE

Toronto General Hospital, NF Clinic

Toronto, ON, Canada
Clinical Director: Galareh Zadeh, MD, PhD, FRCSC
Call for appointment: 416-340-4800 X3400

NF2 Clinical Centres in the UK

  1. St Mary’s Hospital, Manchester UK
    Coordinator: Kirsty Harper
    Consultant: D Gareth Evans, MB, BS, MD, FRCP
  2. Guy’s & St Thomas Hospital, London UK
  3. Addenbrooke’s Hospital, Cambridge UK
    NF2 Nurse Practitioners based at Addenbrooke’s Hospital in Cambridge: Juliette Durie-Gair, and Sally Taylor.
    The clinical lead/consultant for Cambridge is Mr. Patrick Axon, MD FRCS (ORL): Consultant Skull Base and Hearing Implant Surgeon.
  4. John Radcliffe Hospital, Oxford UK
    NF2 Nurse Specialist at Oxford: Claire Mansfield

Genetic Testing Centers

If you are interested to find the specific mutation type of your disease for family or health reasons, the National Center for Biotechnology Information (NCBI) has compiled a database of centers located worldwide which offer genetic testing for NF2. This may require sending a blood or tumor sample.

The NCBI Gene Testing Registry