With NF2 being a rare disease, getting a second or third opinion is highly advised. Below is a list of some NF Clinics with reputable doctors whose backgrounds include NF2.
University of Virginia – NF2 Clinic
Massachusetts General Hospital (MGH) – Neurofibromatosis Clinic
Clinic Director: Scott Plotkin, M.D., Ph.D.
Call for Appointment: 617-724-7856
Other Physician: Brad Welling, MD, PhD
NYU Langone Medical Center – Neurofibromatosis Center
Johns Hopkins, Comprehensive Neurofibromatosis (NF) Center
NIH (National Institute of Health), Clinical Center
Cleveland Clinic – NF Center
Phone: (216) 636-5860
For appointments call: 866-320-4573
University Hospitals – Neurofibromatosis 2 Center
Call for Appointment: 1-866-UH4-CARE
Toronto General Hospital, NF Clinic
Toronto, ON, Canada
Clinical Director: Galareh Zadeh, MD, PhD, FRCSC
Call for appointment: 416-340-4800 X3400
NF2 Clinical Centres in the UK
- St Mary’s Hospital, Manchester UK
Coordinator: Kirsty Harper
Consultant: D Gareth Evans, MB, BS, MD, FRCP
- Guy’s & St Thomas Hospital, London UK
- Addenbrooke’s Hospital, Cambridge UK
NF2 Nurse Practitioners based at Addenbrooke’s Hospital in Cambridge: Juliette Durie-Gair, and Sally Taylor.
The clinical lead/consultant for Cambridge is Mr. Patrick Axon, MD FRCS (ORL): Consultant Skull Base and Hearing Implant Surgeon.
- John Radcliffe Hospital, Oxford UK
NF2 Nurse Specialist at Oxford: Claire Mansfield
Genetic Testing Centers
If you are interested to find the specific mutation type of your disease for family or health reasons, the National Center for Biotechnology Information (NCBI) has compiled a database of centers located worldwide which offer genetic testing for NF2. This may require sending a blood or tumor sample.