News & Announcements

Free NF2 Webinar, November 9, 6:30 pm CST

**UPDATE: You can now watch the transcribed webinar online at Youtube** The NF Network is hosting a FREE NF2 webinar, presented by leading NF2 expert, Dr. Ashok Asthagiri, MD. This new captioned webinar “Learn from a Leading Expert in NF2” will address questions previously submitted by members of the NF2 community. This is an invaluable… Continue Reading →

Important Notice

To those who wish to donate, please note that Advocure NF2, Inc. is no longer a 501C3 charity organization and is unable to accept any donations. Even though PayPal still lists the former contact address for donations, please do not use PayPal or any other avenue for donations. Please do not use Amazon Smiles or… Continue Reading →

May 22 is NF2 Awareness Day

Did you know.. May is NF Awareness month? AdvocureNF2 is dedicating the 22nd as NF2 Awareness Day. Why the 22nd? The NF2 gene is located on chromosome 22, and is where the mutation occurs in people with NF2 (Neurofibromatosis type 2). Currently there is no cure for NF2, and surgical removal of tumors is widely… Continue Reading →

NF2 Research and Media News in 2015

NF2 In the Media: Family bravely copes with daughter living with ‘little ticking time bombs’ Posted:Wed, 09 Dec 2015 11:30:00 EST The only way to describe it is to compare it to living with “little ticking time bombs.” That’s the image shared by Donna Baruchi about what it’s like watching her daughter Tori suffer from… Continue Reading →

AdvocureNF2 Funds NF2 Research for 2015 – FINAL

With over $100K monies raised from The 10th Annual Halloween Bash in 2014, proceeds went to re-support the NF2 research projects of 2014. Their studies had shown much improvement and direction to find a cure for NF2. These projects were: Synodos CTF Cristina Fernadez-Vale, Pharmacokinetic Studies for Drugs of Interest in Treatment of Neurofibromatosis Type… Continue Reading →