News & Announcements

May 22 is NF2 Awareness Day

Did you know.. May is NF Awareness month? AdvocureNF2 is dedicating the 22nd as NF2 Awareness Day. Why the 22nd? The NF2 gene is located on chromosome 22, and is where the mutation occurs in people with NF2 (Neurofibromatosis type 2). Currently there is no cure for NF2, and surgical removal of tumors is widely… Continue Reading →

NF2 Research and Media News in 2015

NF2 In the Media: Family bravely copes with daughter living with ‘little ticking time bombs’ Posted:Wed, 09 Dec 2015 11:30:00 EST The only way to describe it is to compare it to living with “little ticking time bombs.” That’s the image shared by Donna Baruchi about what it’s like watching her daughter Tori suffer from… Continue Reading →

$15 Million in NF Funding Secured for 2016

Announcement from Big NF news out of Washington, D.C. today! Thanks to your dedicated and passionate outreach – your letters and emails, your calls and visits, as well as the collaborative efforts of a number of NF organizations – we are pleased to announce that $15 million in federal NF research funding to the… Continue Reading →

AdvocureNF2 Funds NF2 Research for 2015 – FINAL

With over $100K monies raised from The 10th Annual Halloween Bash in 2014, proceeds went to re-support the NF2 research projects of 2014. Their studies had shown much improvement and direction to find a cure for NF2. These projects were: Synodos CTF Cristina Fernadez-Vale, Pharmacokinetic Studies for Drugs of Interest in Treatment of Neurofibromatosis Type… Continue Reading →

Cindy Baxter Reese, AdvocureNF2 Treasurer and NF2 Advocate

AdvocureNF2 is saddened to announce that Cindy Reese, AdvocureNF2’s longtime treasurer, passed away on January 28, 2015 due to complications of NF2. She gave graciously of her time to consistently provide a high degree of professionalism regarding AdvocureNF2’s financial matters to meet deadlines. She was committed in supporting research to find a cure for NF2.… Continue Reading →